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Exploring users’ willingness to share their health and personal data under the prism of the new GDPR: implications in healthcare

  • Maria Karampela
    ,
  • Sofia Ouhbi
    ,
  • Minna Isomursu
Research Output:
Conference Article in Proceeding or Book/Report chapter
Article in proceedings
Peer-review

Open access

Publication Information

Output type

Research Output:
Conference Article in Proceeding or Book/Report chapter
Article in proceedings
Peer-review

Original language

English

Publication milestones

  • Published - 10/2019

Publication status

Published - 10/2019

Publisher

IEEE, United States

ISBN (Electronic)

978-1-5386-1311-5

Publication IDs

  • Scopus: 85076159960

Host publication title

2019 41st Annual International Conference of the IEEE Engineering in Medicine and Biology Society (EMBC)

Abstract

At the same time healthcare undergoes a digital transformation, the implementation of the new General Data Protection Regulation (GDPR) introduces changes to internet users. Understanding users' data-sharing attitudes for four type of personal data in regards to the new GDPR can facilitate stakeholders and policy-makers in healthcare to make sense of the current landscape. Authors analyzed the results of a questionnaire survey to explore the willingness of 8.004 people across four European countries to share four types of data: health; perceived values or beliefs; consumption habits and purchases; and wealth. Our results suggest that participants are more willing to share health data and data about beliefs and values than wealth information and that GDPR has impacted the data-sharing behavior of the participants.

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